A Little Help From My Friends.

Ready to receive!
Post: 

You may recall from my previous post that in addition to all that empowerment I recieved at my last doctor appointment, I also received an increased dosage of my anti-seizure drug, Keppra.  At the time of the instruction to increase my dosage by 50%, I thought, "Oh, so I'll be a little more tired, a little more out of it - it's already in my system.  No prob."  

WRONG!  Business as usual for a couple of days and I found myself barely able to move from one horizontal surface in my 900 square-foot house to another.  

I used to call it the crazy medicine, but it's turned MEAN.  It's certainly doing what it's supposed to be doing - I've been seizure-free for over two weeks.

First came the physical fatigue.  Then the hysterical crying.  Shakiness.  Dizzy spells.  Soon I was fighting relentless headaches that had me convinced that my head was going to explode.  Blood and brains everywhere, all Quentin Tarantino-style.  Really.

My efforts to meditate the pain away, previously successful, were completely useless, nausea-inducing and painfully frustrating.  Boyfriend was at a horrified loss, and I didn't know how to express the pain I was in, but to cry harder.  I either slept all day and night, or couldn't quiet my mind enough to sleep for a day or two.

Before I realized what was happening, I had no control of my own mind.  "That's below the belt, Keppra."

So back to that previous post.  The one in which I claimed to have recieved an extra-large helping of empowerment, no extra charge.  Shortly after I hit "publish" I must have reached my validation-via-internet quota or something, because my brain turned into a gooey marshmallow and began to ooze out my right ear.  And Girlbert and her empowerment were never seen or heard from again.

But WAIT - that's not how the story ends!  While I may not have been able to put a sentence together for a while now, much less come up with a witty, insightful post, I am trying to process and document what just happened, if only to truly acknowledge the lesson for myself.  So if you will just humor me, I might try to do that right now, albeit with a marshmallow for a brain.

This week made me realize that I've been going about my quest to "Heal Thyself" from not exactly the correct angle.  My outlook has been all skewed, so to speak.  (My high school geometry teacher, Mr. James, would be sooo proud.)  All the health food and juice, kicking my own ass into action and positivity.  Boyfriend's repeated suggestions to rest, meditate, STOP WORKING - ignored.  "You need to work on your mind, or it doesn't matter how healthy you eat."  But I was completely missing the forest for the trees.

Not letting anybody help me, because I was responsible for healing myself.  And I would be calling the shots.  Seeing as how it was my brain tumor and all.   Each good day I had I'd think, "Look at me, I'm going to go in for my next MRI and this stupid tumor will be gone.  I'll show them - I don't need ANYBODY."  And then the universe uses that moment to show me otherwise.

You think you don't need anybody, huh?  You think you can do it all by yourself?  How about I take away your rationality, bodily function and will to live for a minute.  How about then?  Bet you need some help now!

The universe always wins.  Because I wouldn't have survived the last week (much less the last year) without relying heavily on people who love me and want to help me.  So when Boyfriend picked up the inconsolable, lifeless shell of my former, fabulous self off the floor and set it on the couch, emergency-dialed my spiritual guide/channel/healer for a long-distance healing and handed me the phone, I knew better than to resist.  

"Hey darlin', what's going on?"  Tears of relief ran down my face at the sound of her voice, and before I could reply, she began, "Lose the guilt - everybody WANTS to help you.  You're staying on the planet, in your body, because you have a lot to offer in return."

An hour later, I saw a glimpse of myself in the mirror for the first time in over a week as I brushed my teeth.  Then I went to bed and slept for 13 hours.

The next morning morning I woke with a headache, but I meditatively karate-chopped it, and it cowered in the corner for the rest of the day. That's right! I might kick you again!

Lesson in progress: I'm nobody without the amazing people I surround myself with.  By opening myself to this lesson, I have regained the ability to meditate.  I have reopened myself to the endless supply of love, support and positive energy and am realizing how much more power I have to heal.   Opportunities to give back are currently presenting themselves as I can handle them, and it feels so good to give!

I have my next two-month MRI tomorrow morning (Tuesday, 9/8/09).  I am open to receiving positive, tumor-shriveling energy, starting right now.  I can't wait for the amazing results, and I will certainly let you know how hard my (Ninja) Neurologist's jaw hits the floor.

Hello Keppra - I see you, and I plan to match your merciless side affects with kung fu meditation and a little help from my friends.  You, too, little tumor.

UPDATE 9/9/09, 2pm:

Yesterday I was turned away from my second two-month MRI because of a miscommunication between doctors, staff and the myriad of patient financial "assistance" programs involved.  THE GOOD NEWS IS: I have received authorization for the MRI, and have been rescheduled for 5:30pm this evening - so BONUS tumor-shrinking time for me!  I should still be able to have my MRI in hand for the appointment with my Ninja Neurologist tomorrow, so I'll keep you posted on the good news (and jaw-dropping!).

May the girl-nerd win.

Comments

I laughed. I cried. It was

Rooty Tooty's picture

I laughed. I cried. It was the best post ever. I am so here for you and sending positive tumor-shrinking thoughts to you as I type. Seriously, you can kick the butt of a 1,000 horse (and a mare at that). Little Miss Tumor's not going to know what hit her. I'll be thinking about you all day tomorrow!

Thanks for the reminder!

girlbert's picture

That's right, I'm a tough horse chick!  How many horses have I ridden with broken feet, concussions, and a possible lower leg fracture?  Silly brain tumor doesn't know who she's dealing with!

Thanks for the positive vibes!

UPDATE 9/9/09, 2pm:

Yesterday I was turned away from my second two-month MRI because of a miscommunication between doctors, staff and the myriad of patient financial "assistance" programs involved.  THE GOOD NEWS IS: I have received authorization for the MRI, and have been rescheduled for 5:30pm this evening - so BONUS tumor-shrinking time for me!  I should still be able to have my MRI in hand for the appointment with my Ninja Neurologist tomorrow, so I'll keep you posted on the further good news (and jaw-dropping!).

i'm on it!

so glad you put it out there to ask!  I hope you feel immediate results!  I will definitely be spending as much time as I can tonight on sending super-shrinking waves to that pesky tumor.  the force is on your side!!!

 

I also have info on some more people that might contenders for supporting you in healing.....too long for here, but when you're ready for more information give me a call......  ;D

 

sending lots of love and strong visuals of you in perfect health!!! <3

What a ride!

girlbert's picture

It's quite the feeling, being aboard all this positivity.  Thanks so much, Jill.  Back at you and your family!

UPDATE 9/9/09, 2pm:

Yesterday I was turned away from my second two-month MRI because of a miscommunication between doctors, staff and the myriad of patient financial "assistance" programs involved.  THE GOOD NEWS IS: I have received authorization for the MRI, and have been rescheduled for 5:30pm this evening - so BONUS tumor-shrinking time for me!  I should still be able to have my MRI in hand for the appointment with my Ninja Neurologist tomorrow, so I'll keep you posted on the further good news (and jaw-dropping!).

We'll talk soon!  XOXO

 

 

I absolutely love what your

I absolutely love what your spiritual healer/friend said:  you're staying on the planet, in your body, because you have a lot to offer in return!!!  i want to remember that!  i most definitely will be sending (and am already doing so) positive vibes, energy, prayer your way for tomorrow.  i have no doubt that this and any future MRI's will show magnificently SMALL results where that effin tumor is concerned!  i know i speak for myself and probably all of us who read girlbert, when i say that you really DO offer us so very much in return, in your writing and your  attitude and your friendship!  much love and support to you!

She's great, isn't she?

girlbert's picture

Kinda like you're great, too.  We're ALL great and have much to offer - and once you start giving back, it's amazing how much you get in return, isn't it? 

Thanks SO much for your thoughts and positive energy.  Practice on yourself.  Sending much love and healing vibes your way as well.

UPDATE 9/9/09, 2pm:

Yesterday I was turned away from my second two-month MRI because of a miscommunication between doctors, staff and the myriad of patient financial "assistance" programs involved.  THE GOOD NEWS IS: I have received authorization for the MRI, and have been rescheduled for 5:30pm this evening - so BONUS tumor-shrinking time for me!  I should still be able to have my MRI in hand for the appointment with my Ninja Neurologist tomorrow, so I'll keep you posted on the further good news (and jaw-dropping!).

 

skewwwwwwww...

rebelprince26's picture

you're amazing and still very much my hero.  i'm glad you're learning to accept the help of others.  we are desperate to give it!  good luck with the MRI tomorrow, I can't wait to talk to you soon!

Not parallel, not intersecting...

girlbert's picture

Kind of like my life.  Hahahaha!

Do I need to have another seizure to get you to call me? ;-)

UPDATE 9/9/09, 2pm:

Yesterday I was turned away from my second two-month MRI because of a miscommunication between doctors, staff and the myriad of patient financial "assistance" programs involved.  THE GOOD NEWS IS: I have received authorization for the MRI, and have been rescheduled for 5:30pm this evening - so BONUS tumor-shrinking time for me!  I should still be able to have my MRI in hand for the appointment with my Ninja Neurologist tomorrow, so I'll keep you posted on the further good news (and jaw-dropping!).

hey - I AM calling.  you're

rebelprince26's picture

hey - I AM calling.  you're just not answering.  :)

 

i think i can try again on friday evening.  will you be around?

Ass-kicking post!

Laurel's picture

This may make you gag, but you've totally inspired me with this one. It's heart-wrenching to think of you suffering, sweets, but WOW did you come out the other end with a vengeance! Your healer is spot-on; you have so much to offer, and so much love, support and help on which to draw. Your description of your process could not possibly be more coherent, beautiful and yes, INSPIRATIONAL. I love your 'tude, and will be thinking of you all day today until we hear some positive results.

Massive, teary hugs and kisses.

Laurel

Not gagging.

girlbert's picture

I'm taking all the love I can get right now.  So grateful.  So, thanks.

But I'm calling you on over-use of the word inspirational.  ;-)

Positive results, coming soon!

Teary hug, back at you!

UPDATE 9/9/09, 2pm:

Yesterday I was turned away from my second two-month MRI because of a miscommunication between doctors, staff and the myriad of patient financial "assistance" programs involved.  THE GOOD NEWS IS: I have received authorization for the MRI, and have been rescheduled for 5:30pm this evening - so BONUS tumor-shrinking time for me!  I should still be able to have my MRI in hand for the appointment with my Ninja Neurologist tomorrow, so I'll keep you posted on the further good news (and jaw-dropping!).

Anti-convulsant meds

The pharmacy changed my carbamazepine to a different generic manufacturer and I couldn't walk or talk. Powerful drugs those anti-convulsants. 

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