The Six-Month Mark: On The Fastrack

So here I am, six months to the week since my diagnosis, and the "wait and see" approach has clearly come to a grinding halt. The tuber is done waiting.  My brain, my body, my mind know that something must be done.  

To get you caught up:

We returned home from our trip up north on Saturday evening.  I have so much to report about my healing, transformative, cathartic week in the San Fransisco area, but that will have to wait for now.  I experienced a huge shift while up there, with my tumor behaving nicely, and my body handled the travel, neuro-acupuntcture and visiting with friends with no noticible strain or symptoms.

Until Monday.  About midday, I felt a "mini-seizure" (my word for concsious seizure - pins/needles on my left side, ringing ears, metallic taste, etc.) coming on, so I thought I would rest and meditate it away.  Normally, 2-3 minutes of meditation and relaxation would take care of it, and it'd be gone.  But the discomfort lasted a few hours, and Boyfriend and I put a call into the ninja neurologist.  He suggested that we go pick up a prescription for a sedative to stop the seizure, and if no relief in an hour, advised that we go the the hospital for help.  

I spent Monday night at Santa Barbara's magnificent Cottage Hospital, not willing to mess around with the seizure that wouldn't go away.  My ninja neurologist, oncolologist, other doctors, Boyfriend and I are all working on a plan make it CLEAR to Medi-Cal that I need to pursue treatment NOW.  Not whenever they feel like finishing my paperwork and approving me, but NOW.  Strongly worded letters have been written, we're expecting a response in a few days to a week.  Having me in the hospital under observation and treatment solidifies the urgency of the situation, should any further questions come up (for poor, slow-on-the-uptake Medi-Cal) with regards to the current state of my health.

So that's the short version.  I don't have my head even remotely wrapped around treatment options.  When I do, I'm sure it will involve flow charts, calendars, and a crazy pictionary-style easel, and there's still a lot of data to collect.  My next few baby steps are focused on getting Medi-Cal approval so that I can get in with some neuro-surgeons, neuro-oncologists, and the like, who have seen cases similiar to my own, and will be better able to advise my on my Western options.  Complementary therapies remain part of the long-term plan and I will continue the neuro-acupuncture and energy work.  I am determined to keep my body and mind as healthy and strong as possible through meditation and nutrition.

Currently the tingles and spasms are still intermittent, so I'll stay put here at Cottage until I'm consistently comfortable - the forced rest and care are certainly good for me, and no better place than my hospital bed to wait out the word on Medi-Cal and weigh the options my various local doctors have to present.

Boyfriend is right by my side, and has been, but for the runs home to get supplies (a girl's gotta have her good shampoo and face cream!) and give Truly some kibble and a snuggle.  So we wait, with smiles, love and hope.  I'll keep you posted on any changes, I'm hoping for a powerful update soon.  As always, positive, healing light and energy help, if you feel inclined to share.  Love to you all!